This week was crazy with appointments. It started on Tuesday with Savannah seeing the cardiologist. That was a good appointment, all is still stable as far as her heart goes. They said the high blood pressure and tachycardia are related to anxiety more than anything else.
Wednesday was crazy. Caroline has speech and the other two kids had psychiatrist appointments. There were a few adjustments made to their medications, but nothing major. They agreed that Savannah was getting increasingly anxious. However, she does have to deal with more medical stuff than most adults, so that is no surprise. Caroline also had an appointment with her 1:1 preschool teacher.
Thursday I had an appointment to talk about Savannah's speech this year. Savannah and Ian also had OT. Savannah is getting speech 2x week this year rather than 1 like last year.
Friday was Caroline's first neurology appointment. She does have NF1. We will be scheduling her an MRI as soon as the hospital calls. They are also going to get her an eye appointment, as he wants the eye doctors to get a better look at her optic nerves. I may switch neurologists though..the office staff where we go is terrible and it is so hard to get appointments. I'll wait till after the MRI to decide for sure.
I am hoping for a nice calm family weekend. I would hope for calm weeks, but it does not look like that will happen anytime soon. As of now we have standing appointments 3 out of 5 days and that is looking to increase to at least 4/5 soon. Then I still have to add in the monthly appointments and the extra appointments on top of that.
Right now I am just thankful they are as healthy as they are. It could always be worse, a lot worse.